Monday, October 8, 2007

Change of Plans

Well, yesterday (Sunday) was a stressful day for me at the NICU so I decided to come home--we all left Cleveland around 1:30pm. I'll be headed back Tuesday night or Wednesday morning as we can only be away from the RMDH for 2 days or we lose our room. I would've stayed home longer, but...we'll do what we have to.

Isaac is up on his oxygen today which is not good. They'll begin testing today to find out what the underlying causes are of his NEC. I'll be calling the NICU again around 11:30, after rounds, to find out what the rest of his day is going to look like.

I accidentally left my camera at the NICU so no pics until I return. And I was going to get some fall pics of Hannah, here. Argh.

It's really nice to be home. We went for a walk around the block last night and after we put Hannah to bed I ran out to Meijer to get some basic items. I loved being at my grocery store again. I just kept walking around wishing I needed more so I could continue shopping. Jason nor I slept well last night. It was sooo hot and I think I was anticipating Hannah waking up which she did at 5:15. I did get her back to bed and asleep but since Jason was up for work, I decided to just get up.

We'll be low key for a few days and then head back to Cleveland. I told Isaac's nurse yesterday I need a third wind. I'm starting to drag and have a hard time with all of this. I want to be done down there. I want to bring him home. I want him to be better.

My Papa went back to the hospital on Saturday. He has an infection and they are doing some other tests, as well. Pray for strength for him and Gram.

Thanks so much for hanging in there with us. I don't know what I'm going to do when we do finally come home...I don't want to lose our Internet family! You all have really been fantastic.

Blessings.

6 comments:

Anonymous said...

Boy this is a long roller coaster ride! I keep thinking OK, this is the last hill or loop and then there is more. He will be home soon and then you can be a source of hope for others just starting out with a premie. You can say, "well, look at my son. He was born at 24 weeks and you would never know it by the way he is running around". -Sherry

Anonymous said...

Good morning to Ya!
I am glad to hear you are home for a couple of days. Enjoy the home time as it is precious to you as we all know. This is getting old I know but look what it will be in the end. I would imagine that it seems like time is going in reverse rather than ahead for you. In time it will be over and you will look back and see the lessons learned in all of this. We pray that the Lord continue to give you "HIS" strength/patience and add it to what little you have at this point in time.

As you know I think of you and all of you often during the day. I come in here and check several times a day. I so appreciate you taking the time to update all of us on what is going on.

Well my dryer is calling me so I need to get the laundry done so I can get up to the hospital around noon.

Talk to you later, Christ's Love and mine!!

Anonymous said...

Tiffany, I pray that the Lord sends you everything you need today. I know you must be running low at this point and things never seem to end.

It may be difficult to see or even understand what God has planned for you and your wonderful family but rest assured it is exactly whats supposed to happen.

Like the others said here, you will look back someday soon and have so much wisdom and insight to possibly pass on to others going through what you and Jason have.
Keep your chin up, enjoy your visit home and know we are praying for you!

Warm thoughts and well wishes

Anonymous said...

Tiff,As long as this trial seems, there will be an end to it. But, guess what there will be more. We all hope and pray that it comes in the ways of being demanding, talking back, skinned knees, fights with his sister, etc. and etc.!! But, you are experiencing now the things that you will need for later. With where you have been, (with Isaac) these you would expect to be simple and we all pray for the simplicity of those life long events. I guess what I am trying to say, if this time is to be the worse, you are doing it and building your patience. That is what you say you need. You and Jason are for the most part tired...but, you will keep doing what you need. With love and support of family, friends, acquaintances and (not really) strangers. Isaac, you, Jason, Hannah, and all of us will muddle through, if by the "GRACE OF GOD" I know that "Mama is frustated" URGH!!!!! So is Daddy, so is Hannah. Keep praying as will all of us. Right Mom (Gram)? That is THE BEST we all can do. XXOO Mom (Nana)

Rachel said...

Tiffany,

One of the other moms in my church would like to have you over for a playdate, if you are up to it. She has two kids and is really sweet. Mary and I would love to have you over too. I will give you a call next week, or call me before if you need anything. We are praying for Issac and he/your family are now on our prayer circle at church.

Rachel

Anonymous said...

Hey, I am sure some home time will be good for you. Meet all those lovely people and stuff.

I really hope Papa will be fine soon as well.

See, nothing really new here...

Love and hugs,
Maxi