Isaac had his weekly eye exam this morning and we found out he needs eye surgery ASAP. If he does not receive this laser procedure, he will go blind. As of now, his surgery is scheduled for Friday at noon. While this is a fairly normal procedure for extreme preemies, it's scary nonetheless.
The doctor also believes Isaac has a disease that will require surgery within the next week. He has to undergo a biopsy (probably tomorrow) to confirm their suspicions. Once we have a definite diagnosis we will share with all of you.
Hannah and I had a rough day today. Some really great times and some really bad times.
This is all really frustrating and draining right now. I just want to be alone. I don't want to talk to anyone or be responsible for anyone. I just want to go away for awhile. This is all very selfish, I know. Well, honestly, that's how I feel right now.
Until tomorrow.
PS...I forgot the camera at the NICU again--I'll try to remember to pick it up tomorrow.
Jeremiah 17:7-8
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tiffany.m.evans@gmail.com
OUR LIFE RIGHT NOW
I am a SAH wife and mom. My daughter, Hannah and I recently returned home to MI after living in OH for almost 5 months while we waited for our son, Isaac, who was born at 24 weeks gestation and who we are adopting, to be well enough and big enough to come home. My husband, Jason, is an attorney by day and super dad/husband by night who helps with everything from vacumning to nighttime feedings and diaper changes.
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9 comments:
Tiffany,
Boy you sound really down in the dumps. I wish there was more that I could do for you guys. Please don't think that you are being selfish by saying that you want to be alone, etc. Please do whatever you can to take care of yourself. You are no good to anyone if you are not taking care of yourself. I know as a mother of three this is easier said that done. Hang in there...let God be your refuge and strength and ever hope in times of trouble! Joy.
Tiffany-
I have been following your blog for awhile now, and when I read tonight my heart just breaks for you. Hang in there and remember God has you right where he wants you and his plan is perfect.I hope the days ahead will get easier and know that I am praying for you and your family.
Love,
Shawna
Boise, Idaho
Hey, I'm praying for you. I'll have my Bible study women pray for you tomorrow morning, too. We will lift up little Isaac's health to the Lord.
Much love...
Hey there Tiff, Needless to say this is overwhelming for you. As someone else said let God be your strength! It is easier said than done but you have to pick yourself up as no one can do it for you. "Try" more positive thoughts than negative. All of us out here are praying for strength and patience for you but you have to do your part I "know" that you are trying, just keep up the good work.
There is nothing wrong with voicing your feelings, you get it out in the open rather than holding it in and letting it fester and get the better of you.
We pray that all goes well with Isaac in these troubled times with the two surgeries coming up. It is wonderful that the doctors can diagnose these things now. Probably 10 or more years ago they could not do so.
We pray that Hannah gains more patience as this has to be rough on her to as she does not understand completely what is going on. She is just a beautiful 2 year old. The only way she has to express herself as you well know it to act it out like we all would like to do at times.
Our prayers and love are with you and your family. BIG HUGS!!!!!!!!!
Gram and Papa.
PS. Our land line is on the fritz today again. I spent around 3 hours yesterday trying to figure out what was wrong. When you call the companys all you get is a "darn" computer.
Tiffany,
I have been away from the pc for a couple days, I am so sorry to hear your feeling down. Its so understandable considering whats on your plate right now.
I will continue to keep you and your family in my thoughts. Dont feel selfish, you have given plenty and taken nothing for yourself. You absolutely do need some "me time" I hope you get some soon. In the meantime try to keep your chin up.
Hugs and prayers
Jodi
I still check your blog all the time waiting for some good news. I just know its going to come soon. Someday you will be able to type "Issac is coming home". How wonderful that will be! I hope you can find some time alone soon and just sleep it off or take a long bath. Today I found I have to have a D&C now. I am so scared but the kids were at school and I took 2 xanax and a long nap. I just felt better. It keeps me going to know one day I will be posting pics of my new baby. -sherry
Does he have Hirshsprung's?
Many, many prayers coming your way. I cannot even begin to imagine how you must be feeling. I pray that you will be feel God's arms surrounding you and holding you. Praying for your family.
Tiffany,
We don't know each other, I found your site thru Josh & Shelley's. But I've been in your shoes and know how you feel. Our son was born at 29wks and spent 63 days in the NICU. Just when we would think things were going to be okay something else would come up. He is now 3 and is doing well. He has had around 20 surgeries in the last 3 years with the most recenty being this past summer. We spent 40 days in the hospital and underwent 8 surgeries. He has hydrocephalus and craniosynostosis. I remember when he was in the NICU I didn't want anyone. Anytime someone would ask about him it would annoy me. I just wanted to crawl away and hide. Just wanted to be alone. It's okay to feel that way, just remember to take care of yourself too. It's so easy to forget yourself at this time. I'm so sorry for everything that your family is going thru. I will continue to pray for you all and for Isaac to grow stronger and healthier. There will be good days. It seems that the good days go by a lot faster than the bad ones but they are sooo worth it. Hang in there and just believe. If you want to check out Jackson's site it is www.jacksondeanbarnett.blogspot.com. We started it this summer when we were in the hospital. I wish I had started it from the NICU but oh well. Take care of yourself and remember the good days will come.
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