Hannah and I did quite a bit of running around yesterday. But not before we cuddled on the couch and watched some of her favorite PBS shows. It's nice to be doing some "normal" activities.

I had to get some new tires and have some problems looked at on my car. We need one more repair that I didn't get taken care of but hopefully we can get it taken care of within the next month or two. We stopped by our MI adoption agency and got some questions answered about some paperwork. We got a milkshake at McDonald's and Hannah had a short playdate with her best friend, Madi.

I want to take a minute and explain what is going on with Isaac. I don't intend to be dramatic, but he's not healthy. If you think about an adult being in ICU, you understand that their health status is critical. Isaac is in the NICU (Newborn Intensive Care Unit). His health status has always been critical. He is more stable, now, than he has been in the past. But, if he were taken of his oxygen and TPN (IV vitamins), he would likely die in a few days to a week. The TPN that is keeping him alive because he cannot eat, is harming his liver and his bones. He has two peripheral IV's that are HIGHLY susceptible to infection. And, if gets an infection everything is put on hold until the infection is completely gone--usually 7-10 days. He was supposed to get his Broviac yesterday but surgery pushed it back to today. I have been very clear with Rainbow that his NICU staff have been wonderful. But I'm very disappointed with the Surgery Department for continually pushing back his much needed surgeries. He cannot eat again until they remove some pieces of his small intestine that are too dilated for food to pass through--called strictures. He is not bleeding out all over the place, but his surgery is necessary for him to eat, therefore, to live. I DO trust God's timing. And I understand that "everything is for a reason," but as a parent, it is my job to ADVOCATE for my children. ANY PARENT in my situation would be off their rocker, too, if their children were not taken care of in a timely manner and dates continually changed. NO QUESTION. I have always been respectful but firm when speaking with the staff about my frustrations. Next time, it's going to Jason calling. And he's the attorney in the family. He knows how to get what he wants better than I do.

We love our children. It's our responsibility to take care of them and advocate for their needs. And that's what we'll always do. No matter what.